Economic and social data on the impact of human African trypanosomiasis in Eastern Zambia (2004-2014)

These data consist of information on economic, social, demographic, cultural, and treatment seeking behaviour collected from former and current human African trypanosomiasis (HAT) patients in Eastern Zambia between 2004 and 2014. There are two data sets. The first dataset consists information on the economic and social impact of HAT. Information on demographics, culture, and treatment seeking behaviour was also collected. Data for this dataset were collected through structured questionnaires administered to patients themselves or their close relatives (care giver). The questionnaires were developed and delivered by experienced researchers from the University of Zambia. The data have been anonymised by removing the names of villages where the patients lived. In total, 64 cases were included in the study. Verbal consent was obtained prior to commencing all questionnaires.
The second dataset consists of anonymised transcripts of focus group discussions conducted with health workers, people who have suffered from HAT and their relatives or friends. Seven to ten people were included per discussion group, providing information on concepts, perceptions and ideas relating to the social consequences of HAT. A total of eight focus group discussions were conducted during the study. Focus group discussion data were analysed using inductive approaches and thematic coding carried out by two independent researchers. All transcripts were anonymised and personal identifiers were removed to protect patients' individual data. Verbal consent was obtained prior to commencing all interviews. Focus group interviews were carried out by experienced researchers from the University of Zambia.
The data were collected to determine the economic and social consequences of human African trypanosomiasis (HAT) in Eastern Zambia. This research was part of a wider research project, the Dynamic Drivers of Disease in Africa Consortium (DDDAC), and these data contributed to the research carried out by the consortium. The research was funded by NERC project no NE/J000701/1 with support from the Ecosystem Services for Poverty Alleviation Programme (ESPA).

Publication date: 2016-12-05

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Format of the dataset : Comma-separated values (CSV)

Access and use conditions

This resource is embargoed and will be made available by 30 November 2018 at the latest  

This resource will be available under the terms of the Open Government Licence

© University of Zambia

This dataset is part of the following

Where/When

Study area
Temporal extent
2004-03-08    to    2014-09-14

Supplemental information

Other useful information regarding this dataset:

Dynamic Drivers of Disease in Africa: ecosystems, livestock/wildlife, health and wellbeing

Quality

Lineage
Previous and current patients of human African trypanosomiasis (HAT) were recruited from areas of Zambia where the disease was known to occur. All patients who had been diagnosed with the disease from 2004 to 2014 in Lusaka, Eastern and Muchinga Provinces of Zambia were included in the study. Active cases of HAT were confirmed using polymerise chain reaction (PCR) and/or loop mediated isothermal amplification (LAMP). Old cases of the disease were determined from hospital registers and / or the community. Where possible, hospital records of patients who were interviewed were retrieved to confirm the time period patients were undergoing treatment. Structured questionnaires were administered to patients themselves or their close relatives (care giver) to collect information on the economic and social impact of HAT in the communities or districts. Information on demographics, culture, and treatment seeking behaviour was also collected. Verbal consent was obtained prior to commencing all questionnaires. The questionnaires were developed and delivered by experienced researchers from the University of Zambia. Data from the questionnaires were collated into an Excel spreadsheet and exported as a comma separated value file. The names of the villages were removed from the final data set in order to anonymise the data.

Focus group discussions were conducted with health workers, people who have suffered from HAT and their relatives or friends. Focus group interviews were carried out by experienced researchers from the University of Zambia. Seven to ten people were included per discussion group, providing information on concepts, perceptions and ideas relating to the social consequences of HAT. A total of eight focus group discussions were conducted during the study in all the districts, two in Chama, one in Mambwe, two in Mpika and three in Rufunsa. Focus group discussion data were analysed using inductive approaches and thematic coding carried out by two independent researchers. All transcripts were anonymised and personal identifiers were removed to protect patients' individual data. Verbal consent was obtained prior to commencing all interviews. Focus group interviews were carried out by experienced researchers from the University of Zambia. The resulting transcripts entered into Microsoft Word and coded manually to enable us to analyse the data and pick out narratives within the content. The transcripts were stored at the University of Zambia as Word documents. To meet the requirements of the Environmental Information Data Centre the Microsoft Word document was anonymised and converted into Rich Text Format (rtf).

Authors

Mwiinde, A.M.
University of Zambia
Simuunza, M.
University of Zambia
Namangala, B.
University of Zambia
Chama-Chiliba, C.M.
University of Zambia
Anderson, N.E.
The University of Edinburgh
Machila, N.
University of Zambia
Welburn, S.C.
The University of Edinburgh

Other contacts

Point Of Contact
Anderson, N.
The University of Edinburgh
The Royal (Dick) School of Veterinary Studies and The Roslin Institute Easter Bush Campus
Edinburgh
Midlothian
EH8 9XD
Custodian
Environmental Information Data Centre

Spatial

Spatial representation type
Tabular (text)
Spatial reference system
WGS 84

Keywords

Topic categories
Economy
Health
Other keywords
Human African Trypanosomiasis
HAT
Discipline keywords
Social sciences
Social and economic burden
INSPIRE Theme
Human Health and Safety
Place keywords
Zambia
Project keywords
Dynamic Drivers of Disease in Africa Consortium
DDDAC
Taxon keywords
Trypanosoma brucei

Dataset identifiers

https://catalogue.ceh.ac.uk/id/6f70d562-8fcf-4ecd-adaf-cbc5800cc326
doi:10.5285/6f70d562-8fcf-4ecd-adaf-cbc5800cc326

Metadata

Information maintained by
Anderson, N.
The University of Edinburgh
Environmental Information Data Centre
Last updated
2018-06-12T14:48:22